Monday, January 24, 2011

Small Human House Plan

"I speak"


ENS Congress in Verona in June 2010

three years I have been involved with the problem of profound deafness, since I discovered that my grandson was affected, an experience that has made me closer to the world of cochlear implants.

I realized slowly learned that the knowledge regarding the incidence of deafness and techniques to enable hearing and speech are almost completely ignored, even the basic knowledge in the field of language, namely that those who can not hear or speak, he is unknown.

The Ministry of Health has made very little statistical research in this area, I could only personal request, to have the number of installations carried out from 2005 to 2008, broken down by age group and region. Are shown the regions where the plants were made, so at first sight you might get the impression that in southern Italy there are very few children with installation. Stands out, however, clearly a situation that is very Italian, and that most of the installations are carried out on people adult over 14 years they have been carried out 1,942 operations in the period and only works on 1022 children aged 0 to 4 years. Whereas, born in Italy (according to statistics) every year from 500 to 1000 children with profound sensory hearing loss, we are far from the situation in many other European countries. In Sweden, for example over 95%

typically occurs just the problems of deafness so that the majority of people begin to deal with the problem only when it hits a personal level. ... Many of us are people who have a family relative, a son, a nephew (Graeme Clark (father), Mike Rienzi (nephew) ...

This is one of the reasons that led me almost immediately to deal with not only the problems of children with hearing loss but even more urgent for the dissemination of knowledge. And 'evident fact that to get the best result with IC mainly to the effects of language, information is crucial. The information disseminated to the general population will allow parents to immediately request the hearing test as soon as a child is born (because as we know it is still not mandatory). The above information should help people, family members other than the child to live in an environment where not arouse the curiosity, but to help everyone understand and to help the child and family in the path habilitation Listens e alla parola che ha come suo punto focale l’impianto cocleare.

In base a tutte queste riflessioni abbiamo fondato l’associazione Parlo io che come suo scopo primario vuole occuparsi dell’informazione su tutti i problemi che riguardano l’ipoacusia e l’udito.

Un informazione quindi che si estende al campo tecnico medico da una parte man soprattutto al campo culturale, intendendo per culturale quel insieme antropologico che si estende a tutti i fattori: epistemologia del linguaggio, acustica, pedagogia, psicologia …

E’ fondamentale suscitare interesse e anche sentimento, emozione e desiderio di aiutare, nel diffondere le informazioni che riguardano l’handicap language, since it almost seems that the problem of deafness will inspire you wish to "avoid" that is certainly not aware of a psychological rejection by most people. You can be sure, just as an example of what I'm saying that it is the opposite of what happens when we speak of a disability such as blindness. A subject on which I can not stretch but is on the agenda of the tasks of the association speak.

One of the purposes of information and also to bring a sense of gratitude to the public and journalism extraordinary activity of scientists, physicians and surgeons in this campo perché non hanno ancora quella fama e notorietà che meritano, sarebbe da proporre nel futuro più prossimo il premio nobel della medicina a questa specializzazione.

Marianne Bengtsson Agostino, docente di salute pubblica all’università di Roma Tor Vergata,
PhD alla Nordic School of Public Health in Göteborg, Svezia.



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